Confusion again

Everyone knows that dementia involves confusion. What you dont realise until you are involved with a dementia sufferer is how confusing things can be for friends family and carers as well.

I went to see Edna tonight -with some shopping- so I could find out what went on yesterday evening. I still dont know. She said she wouldnt let them in becasue she didnt know who they were. She also said that she told Alma and that Alma said she did the right thing.

But then she went into a diatribe that pared down to the basics was all about her not having control over things.

She is is I suspected upset that her carers have been changed. She says has also been told she is going to ahve to pay. At the moment if she is told she has got to pay I can see her telling the carers where to go. I dont think they can start a care service and then say 'you've got to pay' without some notice and consultation. But her version of last night did ot aree with what the care team told me, and what she was telling me was so confusing, mixing uo past and present. She even went back to moaning about the way the hospital treated her.

So basically I was confronted by Mrs Jekyll. And I now dont know how much of what she has told me can be beleived.

I feel very despondent at the moment. DWLB is characterised by fluctuating symptoms. So is this a fluctuation or is it partially due to the week long gap in treatment?

I had got used to the feeling I could beleive what she told me - and now I am not sure.

Its horrible