The change in title says it all. Today for the first time I had a chat with Dr Ostler and she said they think Edna has Lewy Body dementia - and may have some risk factors for vascular dementia as well. That deosnt rule out Alzheimers at some point of course - but it should make discussing treatment with Edna MUCH easier. She is terrified of the 'A" word.
I need to look up LBD . Dr Ostler is seeing Ednba tomorrow - and wants mew to be there as well. She has promised to bring me some information.
I dont know if this makes a difference in what we can exepct in the future. But at least I know have some solid information to go on.
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This blog started off as 'Alzheimers and me' then changed to 'Dementia and how I coped' when I learned about Lewy Body Dementia. The final title reflects the illness and its effect on patient and carer. It also recognises that the patient has a life that needs to be recognised and valued
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